Dec. 1, 2020 — When a faculty member or research team requires patient data — to support grant proposals or to fulfill complex investigative studies — they rely on UF Health Integrated Data Repository Research Services. The team has launched a new website to make data requests easier — and provide health researchers with access to the COVID-19 De-identified Patient Dataset, which is pre-approved by the Institutional Review Board for faster access.
The UF Health Integrated Data Repository is a large-scale database used to collect, store and report on information from across UF Health’s clinical and research enterprises. The IDR Research Services consultation team delivers data to facilitate new research discoveries and support patient care quality and safety efforts. Services include consultation; feasibility and cohort discovery, including i2B2 database training tools, clinical trial patient recruitment support and fulfillment of research data needs.
The IDR Research Services team is a collaboration under the UF Clinical and Translational Science Institute and UF Health Information Technology.
“The IDR provides research services benefit from a unique UF collaboration that unites data experts across from UF Health IT, the CTSI and our health colleges,” said Christopher A. Harle, Ph.D., UF health outcomes and biomedical informatics professor and UF Health chief research information officer.
“The new website describes, in researcher-friendly language, the full scope of data services offered to researchers across UF, and how to navigate interactions with the IDR research team.”
Investigators can use the website to request access to the new dynamic, real-world COVID-19 de-identified patient dataset for use across the university.
Harle added, “The COVID-19 patient dataset’s accessible format and IRB pre-approval supports rapid research. We hope to offer more resources in the future like this to expedite discovery.”